Craniosynostoses

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PHAEDRA05
Posts: 4587
1/22/09 12:00 A

I just found out that my daughter might have craniosynostoses - probably Scaphocephaly (Sagittal synostosis). I haven't even had the CT scan done, so it's not for sure, but reading and comparing the pictures to her head, I'm pretty sure that this is what it is.

Has anyone else dealt with this? What experiences have you had?

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