I too was diagnosed during an US, I have to say that I am very lucky to be the mommy to a 6mo old baby girl with Ds. We go to support groups, really its more like just being around other parents in the same situation as yourself. Our Sophia is a happy baby and from everything I know she is going to be a happy well adjusted person. She does get OT once a week, because our kids need help strengthening their muscles, besides that she seems to be developing just great. She does have a couple medical issues, but nothing that she has to take medicine for. Just monitoring. As I stated in the beginning, when we found out, we figured her having Ds wasnt the worst thing that could happen. She will do everything just like anyone else, just will take her a little longer to get there.
10/11/08 9:49 P
So, at my 11 week ultra they saw what might be nuchal thickening and said the specialist will know if my chances for DS are high or not. My husband and I are TERRIFIED. I can't explain how hard this has been - please help me. Can you give me some insight as to what life would be like? I know it is awful to be scared, and I don't know if it will be anything but I want to be prepared. I am praying constantly and trying to rely on God, who I know is in control of it all.
9/14/08 11:14 P
Well my daughter is only 12 1/2 months. She does do the belly flop thing and since daddy and I have been working with her....she is going down with one leg now...we've only been working with her about 2 weeks....and her constipation started when we changed her from formula to whole milk...my non DS son had a similar problem...i put a little Karo in the milk....it works....sometimes I had to keep at it for a few days but it worked for him...so far it is working for her...this is in addition to the fruits and prunes etc...that's all I can think of for now....I would like to continue corresponding with u if that's ok!
2/13/08 2:04 P
Hi and from experience it can be a little frustrating at times. My little Faith is almost 3 so I have walked in your shoes. As for teaching No. a major part is being consistant. My husband is really good at this and Faith listens so much better to him then me so I definetetly have to work on this too. As for standing we would put the toys she liked on the couch or chair and in order to play with them she had to be standing. Sometimes she would just flop down and wouldn't do it but we would just keep the toys up there so she only played with them if she was standing up. She didn't walk until she was a little over 2 so don't get frustrated if it takes a while. My daughter didn't do that but I know that if they do it a certain way and you try to have them do it differently then it is a hard habit to break so definatly follow you therapist advise. As for constipation I usually try to give her a lot of fruits that start with p (pears, plums, peaches and also apples and raisans as well) You can also talk to his ped. and see if there is something over the counter that would help him. Also to help with the grunt have you started teaching him signs? It has really helped our daughter communicate with us and we just repeat the sign back to her while we say the words.
I hope that helps a little bit and if you need to just mommymail me. Good luck.
Katie -WAHM to 4 little blessings.
Stayin Home and Lovin It! helping people take control of their financial futures from home. www.stayinhomeandlovinit.com/katie
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